Xperiome™ Labs

Learn how we turn patient experience into insights through our knowledge bank for the lived experience of rare disease.

Research

Learn about the research studies we conduct with commercial and academic partners, and the clinical trials we support for pharmaceutical sponsors.


Active
Generalized myasthenia gravis (gMG) ADAPTSC clinical research study
ADAPTSC is a clinical research study testing whether there is a difference in effect on the body between 2 administration routes of an investigational study drug in adults with generalized myasthenia gravis.

Completed
What do you think about your cystic fibrosis treatment(s)?
This study aims to learn what people with cystic fibrosis actually think about taking the CFTR modulator therapies Kalydeco, Orkambi, Symdeko/Symkevi, and Trikafta/Kaftrio. This is not like other studies that may only focus on following doctors’ orders.

Completed
What do you think about your IPF treatment(s)?
This study aims to learn what people with idiopathic pulmonary fibrosis actually think about taking the medication(s) nintedanib (Ofev) and/or pirfenidone (Esbriet). This is not like other studies that may only focus on following doctors’ orders. 

Completed
What do you think about your myasthenia gravis treatment(s)?
This study aims to learn what people with myasthenia gravis actually think about taking the medication(s) eculizumab (Soliris), neostigmine (Bloxiverz), and/or pyridostigmine (Mestinon, Regonol). This is not like other studies that may only focus on following doctors’ orders.

Case studies

Discover how we’re making our mark in research and accelerating the development and reach of new treatments.

Visit our Virtual Venue to find out how Xperiome can help you unlock deep insights into rare patient experience.