Articles and publications
Read our perspectives on news and trends in rare disease, and how patients can be powerful agents of change in health.
Learn how we turn patient experience into insights through our knowledge bank for the lived experience of rare disease.
Learn about the research studies we conduct with commercial and academic partners, and the clinical trials we support for pharmaceutical sponsors.
Read our perspectives on news and trends in rare disease, and how patients can be powerful agents of change in health.
Discover how we’re making our mark in research and accelerating the development and reach of new treatments.
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